5 Tips for Staying Healthy with a PIDD

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Primary Immunodeficiency Diseases, also known as PIDDs, are rare genetic disorders that cause the immune system. More than 400 disorders fall under this category, and they vary in severity and age of onset. Some cause problems from birth, while others don’t start showing up until well into adulthood. When you have a chronic illness like a PIDD, living a healthy lifestyle has the potential to improve your outcomes. Read on for tips on managing a PIDD in a healthy way. 

Examples of PIDDs

While hundreds of disease fall under this category, these are some of the most common PIDDs: 

  • Common variable immunodeficiency (CVID)
  • Ataxia-telangiectasia
  • Chronic granulomatous disease (CGD)
  • DiGeorge syndrome
  • Hemophagocytic lymphohistiocytosis

Tip 1: Learn About the Disease

Every disease is different, and even if you have the same disease as someone else, there’s always a chance it will manifest differently. The more you learn about your disease, the easier it will be to manage your symptoms and figure out a treatment plan. If the option is available to you, consider working with a specialty infusion pharmacy like AvevoRx, where patient advocates can educate you on your illness and help you through every step of treatment. 

Tip 2: Stay Nourished with Proper Nutrition

Everyone can benefit from eating better, especially when it comes to boosting immunity. As someone with a PIDD, you need to focus on ways to reduce inflammation and feel better. Limiting your intake of foods that are high in fat and sugar can reduce your risk of developing diseases like heart disease or diabetes, which your disease can make you more susceptible to getting. Here are some foods to consider incorporating into your diet to reduce inflammation: 

  • Blueberries
  • Fatty fish
  • Extra virgin olive oil
  • Ginger and turmeric

Tip 3: Get Active with Regular Exercise

Working out won’t always be an option when you have a PIDD. When possible, exercise in a way that gets your body moving without pushing you too far. Consult your doctor before starting an exercise program. Lighter workouts like yoga and pilates can be suitable for those with PIDDs because they benefit your body and mind without causing significant strain. 

Tip 4: Manage Your Stress

Stress can make any illness worse. Once you receive your diagnosis, consider joining an in-person or virtual support group. Find trusted advocates in your everyday life who can help you on the more difficult days. A few other things you can do to manage your stress are making sure you get plenty of sleep, asking for help when you need it and keeping your treatments on a schedule you can follow. 

Tip 5: Go in For Regular Medical Check-ups

Even if you feel like you’ve solved the puzzle of managing your disease, monitoring through regular medical checkups is essential. Talk to your doctor about any plans you have for changing your diet, traveling, getting vaccinated, and anything else that could impact your daily life. Your doctor can also check to see if your treatments are working and help you adjust your treatment plan as needed. 

Signing up for our program is easy, with real humans involved every step of the way. Patients with PIDDs, as well as their providers and payers, can count on AvevoRx to provide personalized care throughout the process. We offer service, speed and simplicity to those navigating complex healthcare systems. Contact us today to learn more.

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