Living with a bleeding disorder often means seeing all kinds of specialists, from physical therapists to dentists, on a regular basis. Some bleeding disorder patients also require infusion therapy, which can be done in the hospital or at home. With this much of life dedicated to medical care, these patients may wonder if there’s anything they can do in their daily lives to help them manage. Here are a few recommendations.
Sticking to an exercise program can be difficult, and it’s important not to dive right into intense workouts. Start small, working out for short periods of time and building up endurance over time. Activities that don’t put too much strain on the body, like swimming and bike riding, can be great for those with bleeding disorders. Weight lifting may be too much, even once endurance has been built up. If they stop working out for any reason, they will need to build their way back up to where they were.
People with bleeding disorders may be afraid of brushing and flossing due to a fear of bleeding. However, tooth decay can be especially bad if you have a bleeding disorder. It’s recommended to brush and floss at least twice a day, as well as eating a balanced diet where candy is a rare treat. For hemophilia patients, toothbrushes with medium texture bristles and interdental cleaning aids beyond floss are highly recommended. Seeing the dentist every 6 months is also essential.
Being overweight can make bleeding disorders like hemophilia worse. Excess weight puts strain on joints, which can lead to more bleeding. Excess weight can also cause trouble finding veins when taking factor, as well as needing to take higher doses. Patients should focus on eating a variety of healthy foods that can provide energy, protein, vitamins, minerals and fiber. Foods that are high in fat and cholesterol, as well as alcohol, can put undue strain on the liver.
Most adults deal with some level of stress on a daily basis. Having a bleeding disorder can exacerbate stress due to the expense, pain and hassles of dealing with it. Many doctors believe that too much stress can lead to more frequent bleeds. Bleeding disorder patients need to take time out of each day to enjoy a low-stress activity. A mindfulness or meditation practice, as well as regular exercise, eating nutritious foods and sleeping well can also help with stress.
Following the Doctor’s Orders
It’s important to keep up with bleeding disorder treatments, even when they’re inconvenient. Keep in mind that many medications can affect the way platelets work, so patients need to be cautious when taking any medication that’s not prescribed by a doctor. Aspirin, ibuprofen and birth control pills are a few common examples of drugs that can make bleeding disorder symptoms worse.
Bleeding disorders can mean a lot of time focusing on the medical side of healing, but daily life is just as important for overall health. At AvevoRx, our advocates help patients through every part of their health journey. We deliver speed, service and simplicity to patients, providers and payers. Signing up is easy, with real humans involved every step of the way, from drug and disease education to financial assistance and beyond. Contact us today to learn more.